An open letter to the mom whose baby was diagnosed with LM


Dear momma of the baby diagnosed with LM,

I know you’re scared. I know you’re in pain, wondering why it had to be your baby.

I know you are confused and you’re worrying about your baby’s outcome.

I’m here to give you a little reassurance.

My mom was in your exact position fourteen years ago. She was scared, she was wondering if her baby would ever be able to live a “normal” life.

Let me say this, “normal” doesn’t exist.

Your baby will thrive as they grow, they will learn how to talk, to walk, and how to giggle at the silly faces you make in attempts to cheer them up at the hospital.

They will learn to voice how much they love you, they won’t have to learn to appreciate all that you do because it comes naturally to them.

They see all you do and have done for them, they’re thankful for every time you kissed and cuddled them before they went back to the O.R for a procedure.

They are thankful for the patience you have when when they try to fight against getting their trach or feeding tube changed.

They learn about acceptance and compassion for others early on. They will learn to play with the little kid alone on the playground, they will learn to share the toys in the waiting room with the other child.

They will learn to dance and sway as one of their favorite songs play. They will learn to pick flowers to give to you and blow bubbles as they play in the yard.

They will learn that real friends will stay by their side no matter how they look or how sick they may be.

They will learn about all the different treatment options and will hang out with their favorite nurses.

They will learn how to wipe away your tears when you feel like your world is crashing down.
(And they will forever be grateful as you do the same.)

They will learn how to get around in this world pretty quickly.

You will both learn that you two are a team, a package deal.

No matter how rough the going gets you will have each other to lean on.

So listen up momma, you’ve got this and so does your little fighter. You’re both going to be okay.

You’re both going to learn how to soak up the sunshine and how to dance in the rain.

Keep your head held high and stay strong momma.

Love, the girl with LM


3 thoughts on “An open letter to the mom whose baby was diagnosed with LM

  1. Hailey says:

    I just want to say, you have helped lift my spirits with your strong words. My baby boy was diagnosed with LM at 32 weeks gestation and is now 4 days old, being the toughest little hero I’ve ever known.
    God bless you!

    Liked by 1 person

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